"The Day I Faced That Dragon:" A call for visual stories.


The bustle of PAX Prime is upon us.  It is hard to believe it has been a year already.  I am grateful that in the Indie MEGABOOTH this year, we were assigned the same booth location.  There is a small storage area in that corner of the floor.  

I will use it again to hide.  

It will be my refuge when my throat gets too tight.  For when I have to explain yet again that Joel is no longer with us.  For when I tire of the latest overheard and flippant joke of “what’s dragon cancer?” and the sea of faces and funny hats becomes too stormy to remain afloat in the life raft of hugs and tears that surround our booth.

I am grateful.

To have a space to memorialize Joel.  We get to tell our story.  I get to tell the world why MY son mattered.  Why should I get to do that?  Why me and not someone else.  Because he was MY son.  And he mattered to ME.  And I miss him.

I am not alone.

And I know that there is a deluge of tears shed every day for the soul that inhabited that room; that car seat; that pair of pants; that bit of air that was filled with his laughter or her voice.

So we want to make space for your story.

“The Day I Faced That Dragon.”

What do you miss the most? How did it change you? Where do you find hope? What do you do with your anger? Maybe guilt? Where is joy to be found?

Bottle it up, pour it into a cup.  Make something beautiful.  Make Art. We’ll serve it at PAX on your behalf.  This year we’re raising money.  This time with Extra Life.  They love games, you love games.  They love kids, they raise money for children’s hospitals.

Here’s what we’re asking for: 

  • Create a work of art that can be printed.
  • Email us about the day you faced “that dragon” in what ever form it came it does not have to be cancer.  Any “dragon” will suffice.
  • Attach your art, send it via email to info@thatdragoncancer.com
  • Do this by Monday, August 25th, 2014 9am pacific time.
  • We’ll curate the work and get posters and postcards printed at our expense.
  • All submissions will be posted on-line with your story.

These posters and postcards will be given out for free as thank you’s for folks who donate directly to Extra Life at PAX Prime, we don’t take the money, folks who donate will just show us the receipt.

We’ll provide a donation “kiosk” at our booth.

That’s it.  Tell us your story, we’ll tell it to others and raise money for hospitals that save children’s lives.  

Because the ones we loved matter to us.

-Ryan

Here is my submission:

image

“The sun still rose in spite of my strong recommendation it not.” - Ryan Green - August 19, 2014

Written March 13, 2014 - joelevangreen.com

Amy and I did not get much sleep last night. As the hours flew by faster than I could catch them, we prayed, we grieved, I cuddled my sweet son as tightly as I dared, examining his face and hands and toes and belly button, taking pictures of us that I will never show anyone else, and sweeping the hair across his forehead over and over again.

Joel fell asleep at home. Surrounded by his family and friends, only hours after we had filled our home with songs of worship to our God and prayers for mercy and healing for Joel and for ourselves from the voices of our church and friends and family.

As I awoke this morning after an hour of sleep, I lingered in the early morning light of our room, his body cradled, as always, in the crook of my arm. Except instead of the sweet sighs of comfort and the warmth of his little body against mine, the moors of death had tightened, leaving Joel’s earthly tent, cold and breathless.

And so now we mourn, and we weep, we rage and we argue with the God who knows how the story will end. And we laugh with our family and friends, and sob in the quiet moments, and wrap ourselves in his blankets and wrap ourselves in His peace. The kind that passes all understanding as we make the decisions that will lay Joel to rest.

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